Impact of burden in caregivers of people with dementia

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In 2016 there was 46.8 million people with dementia worldwide. This figure will double every 20 years.

The project
Who is behind

What is our goal?

The aim of this research is to analyse the burden that the informal caregiver of a person with dementia presents (this is a general term to refer to a serious impairment of mental capacity that interferes with daily life, being an example the memory loss; Alzheimer's is the most common type of dementia). In turn, we intend to verify whether this overload of informal caregivers could lead to abusive behaviour.

In addition, we propose to study whether some variables such as the phase of the disease in which patients are and the appearance of conduct disorders can have any influence in the caregiver overload level and promote the appearance of abusive behaviours.

It will also be studied whether this overload in caregivers can be conditioned by aspects such as behavioural disorders (aggressiveness, ambulation) in the person with dementia, type of dementia (frototemporal dementia, Alzheimer's ...), phase of the disease and / or the attendance at a day centre.

 

Who will benefit from our project?

The increase in life expectancy and the population aging favours the appearance of those diseases where the age is a fundamental risk factor, as is the case of dementia.

The number of people with dementia worldwide was estimated at about 46.8 million in 2016. However, the increase in the elderly population and, especially for people over the age of 80, where the risk of developing this pathology is accentuated, coupled with the absence of effective treatment and the difficulty of an early diagnosis, make it foresee that this figure will be doubled every 20 years, reaching 131.5 million people in 2050.

Dementia constitutes, therefore, a true public health problem worldwide, with a high economic and social cost, being considered one of the epidemics of the 21st century.

This disease is frequently attached with a situation of complete physical and mental dependence and implies the need for continuous supervision and care as it evolves. However, the existing imbalance between the sanitary needs generated by the growing increase in dementia cases and the insufficient available resources have resulted in the care and attention of these dependent elderly people must be done by family members, with a strong negative impact.

The main caregiver, therefore, bears the mental, physical and socio-economic weight in the management of the sick person throughout the evolutionary process of the disease. This task requires time, energy and effort and significantly influences their quality of life. In addition, caregivers assume new responsibilities, for what they have not received training, either as a result of the lack of financial resources to access the socio-health resources or because of the idea of ​​not failing his relative.

All this, added to the long lasting of the disease process (around 10 years), contributes to generate a situation of chronic stress in the caregiver known as overload. Reducing the burden on the caregiver is extremely important as it will have a negative impact on the care that the person with dementia will receive. Ultimately, this project aims to improve care for people with dementia and their caregivers.

 

What will you achieve with your donation?

A grant of € 2000 (minimum objective) will allow us to know the psychological impact of giving care to a person with dementia and the variables that lead to the appearance of overload. The amount will be used mainly for consumables to carry out the study.

With every 1000 € of aid we will be able to work for 3 months to investigate the development of intervention programs that are effective in reducing the overload of the caregiver.

We estimate that with the optimal objective (15,000 €) and a period of approximately 12 months, we will be able to develop an effective intervention that allows us to improve the care and quality of life of people with dementia and their caregivers.

 

Do you want more information?

https://drive.google.com/file/d/1Pn5o6uR_eKCrHkOT8VolBVkBSzT6lk0K/view

https://janovas.unizar.es/sideral/CV/maria-jesus-cardoso-moreno

https://www.afedaz.es/

https://www.ceafa.es/es

 

 

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